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Wow!  I can’t believe it has already been 2 years.  Time really does go by fast.  We do miss him and are thinking of him.

Hip Hip Hooray! Praise the Lord!  I have some good news to share.
So, it has been a little over a month so I’ve shared. The reason? Because our primary care doctor deemed the issue non-specific. He determined that there was nothing wrong and that we should accept it, send Trina to counseling and work on the issue psychologically. He, the Gastroenterologist at Children’s, her Gynecologist, the Neurologist all agreed there was nothing physical wrong.

I hesitated posting for one because I didn’t want Trina to believe we were giving up on her. Two, I felt my last post still reflected how I felt and so it remained…

So, we pursued counseling and Trina has been to a whole whopping 2 sessions. We also continued to share her story.

One of my co-workers heard about the issue and went home and told his wife. She is in her first year of medicine at a medical school located in Yakima. She is studying to be what is known as a DO (Doctor of Osteopathy). She took the case to her professors.

According to her, this is how it went:
Immediately, one of her professors said…”Well, it’s obvious, isn’t it?”

She thought for a moment and said “it is?”

“Yes!” He nodded, “Think about it! The vegas nerve…..” And all of a sudden a light went off.

Of course it was! She came home with that knowledge and told my co-worker.

The next day, he said “it could be some nerve…the longest nerve …ummm…I forgot the name of it.”

I assured him I would ask her myself..  but a couple of weeks passed before I had the time to chase down this possibility.  Last Sunday night, the opportunity arose to talk to her!

She strongly encouraged me to find a DO in our area. She named off two names. Dr Cook and Dr Laforge but didn’t have any contact info for either.

I found a Dr. Cook Sunday night but had no luck finding Dr Laforge..I shrugged and determined I should call around Monday morning.

Monday morning comes around and I left the list at home so I log into my insurance plan and look up a list of doctors available through them. I come across a Dr. Cook who is listed as a chiropractor. Knowing that D.O.s sometimes license as a chiropractor instead of a DO depending on qualifications, internships, residencies, etc…I called him up.

HE answered the phone!
Yes, again…HE – the Dr – answered the phone! It couldn’t have been any other way though. I asked if he was a DO and he said “No but what do you need?”

Really?  a one on one conversation with a potential dr BEFORE I have given my insurance information or agreed to pay for services rendered?

So, I decided what the heck, I’ll let him know…

I give him the short version and end with…”we were wondering if the vegas nerve could have something to do with her illness…..”

In 2 seconds flat, he said, “Well, I may not be a DO but I have plenty of practice in working with the vegas nerve. I would really like to evaluate her and see if I can help. Bring her in and I’ll evaluate her for free.”

For FREE? WHAT? Seriously?? I”m thinking…well, can’t hurt right?

THIS is GOD!!!! I’m here to tell you that God had his hand in everything!!!!

(Today I also found out that my mom saw a rainbow on her way to take Trina in to him)….
Trina went in late Monday afternoon. Her neck was out, her upper back and her lower back were ALL out.
So he adjusted her and called me back to tell me he thought he could help. You see, he’s also training in a process known as NMT and would love to see if that would help her – at no cost to us since he was in training for NMT.

Anyways, he wanted to see her 3 times this week for normal Chiropractic adjustments and see if she sees any benefit from that and perhaps we would consider adding NMT to her therapy if there was no response to the standard Chiropractic treatment.

Soooo Trina comes home and says that her neck feels better but she’s still really sick.
Bummer.

But we trudge along as we always have and I take her in Wednesday afternoon. At which point, he spends a great deal of time stretching out her neck in many different ways, he uses a heavy duty massager to work out the tenseness in her neck and shoulders and adjusts her again.

By the time we got in the car, Trina’s says (in a whisper) “Oh my goodness! I FEEL sooooooo much better!”
By the time we got to Albertsons 2 blocks away, she was hungry. Hungry for REAL food, hungry for Mexican and talking about going back to real school!

She did still feel a bit nauseas last night but it was significantly reduced AND today she only vomited twice!!!!!
I am claiming this as God’s victory- He is always working in such miraculous ways.
I am also claiming this post as a THANK YOU to GOD! What a wonderful and powerful God He is!

I want to assure you that no matter what you are dealing with this week, He is there working in the background for the good of His children!

Are you His child?  Do you want to know how to become his child?

He is waiting for you to call on His name, to believe that His son the beloved Jesus Christ not only died on the cross for your sins (& mine) but he also rose from the dead and is making a place for us to join Him!  Just imagine what He is doing in your life just as He orchestrates healing for my daughter.

So on my way home, I heard a song that reminded me I needed to re-calibrate.

So, here’s my calibration:

Yes, we have no idea why Trina is sick.  Yes, David is just now finally starting to heal from his surgery in late September.  Yes, my house is a mess.  Yes, Ellie and Tim have been sick this week and YES, my parents are moving THIS weekend!  My life IS insane.

BUT  I WILL Priase the Lord for HE is in control!  AND, no matter what, I know that He has a plan and a purpose!  AND, as if that’s not enough…I also know that God IS GOOD!

Now, you know my life is a bit insane right now and you are probably wondering how I can say that?

Well, let me start with…

1. I have a roof over my head, a warm bed to sleep in, 3 wonderful children and a loving husband.

2. I have a great job with great co-workers that are a lot of fun even in the stressful moments.

3.  BOTH my job AND David’s job not only pay regularly but provide some pretty great benefits so while the medical bills will soon start rolling in, I will be paying A LOT less than I could be paying if this all had happened last year when we didn’t have any insurance…

4.  David & I both have wonderful family and wonderful believing friends who are praying with us and holding us up when we need it most!

5. Again, as if that is not enough, I can praise the Lord for He IS good!!!  Even when I just don’t know which way is up again, He gives me strength.  Even when I’m down and worried, I’m reminded that His plan is perfect.  He sees it all from up above and knows when and how things are going to fall in place.  HE knows the future and He wins!

So, my dear friends, I am humbled that you choose to read this blog.  Even more humbled that you are joining us in prayer and supporting us during these crazy times.

Thank you!

and, as it is so easy to do, if I have forgotten to ask you how your issues with your life are going, I want you to know that I DO care and I DO want to hear them!  WE will join together with hearts of prayer to speak to the ONE TRUE God who WANTS to hear us cry out to Him.  He carries us all in His hands and will lead us through this valley.  Oh what a joy it will be to stand on the mountaintop above the valley, looking down and seeing all He did to orchestrate everything His way and how very perfect it was!

Because He Lives, I can face tomorrow no matter what it brings!

So, my friends, join me in praising Him, join me in loving Him…and if you have been away from Him these past few years, months or even days, I beg you to come back to Him.  No matter the reason, do not judge Him for the actions of others but, instead, come to know Him as He wants us to.  He is my friend, my confidant, my healer, my all in all.  and best of all…He can be yours too!

To all of Trina’s future Drs: if you don’t want to be part of the solution, please don’t waste our time.

To sum up, The Primary Care Dr has put Trina on some medicine to help her with her migraines that could take up to 3 months to start helping if it is going to help at all.  He also put her on Miralax to help clean her out (there was some concern that she might be constipated as she hadn’t gone poo in 3 weeks-that is no longer a concern).

He ran some metabolic screenings which all came back normal.  He really wants us to follow up with Children’s neuro department.  Children’s Neuro department won’t schedule the appt because the dr who said to call back in a week now says he doen’t treat nauea and vomitting.  They said to see Gastro.

Children’s Gastro says it’s not a gastro issue.  Her stomach has passed all tests.

So today, after some research, I drug Trina to an Obstetricts/Gynecology dr with the hope that she might have some ideas.  A co-worker of mine had told me of similar issues she had experienced that one dr finally put 2 and 2 together and realized it was endometriosis.  last week when she had told me, I dismissed it.  After all, Trina is 14 years old!

BUT, there are some things that make sense.  1-her cycles are every 2 weeks with spotting in between.  They are not regular.  They are painful and have heavy bleeding quite often. 2- Nausea and vomitting are a symptom.  3-nobody has taken any xrays or ultrasounds of anything below the waist. A cyst or other issues in that area could easily cause these symptoms.

So off we go.  Me with my silly hope that perhaps we will find an answer.  I figure I won’t have to justify myself because maybe this dr will see the same connection.

I was wrong. 

The Ob/Gyn gave us an hour lecture about how all is fine. How she needs to get out of the house for a walk a half hr each day, eat saltines and psychologically tell herself nothing is wrong because there is nothing wrong.

In the same conversation, she acknowledged that cycles should not be more often than every 21 days and no more than 10 days of bleeding each cycle. All the while holding her list of cycles showing more often than 21 days apart and longer than 10 days of bleeding…but somehow the fact that 11 days of bleedingis more than the 10 days she just said didn’t connect in her mind.

She sent us away saying there was little she could do to help except order an ultrasound.

The appointment wasn’t all a waste.  I did find out one more suspicious thing.

In July when we saw her, they did a pelvic exam.  I assumed they also did a pap smear.  I found out today that they don’t do pap smears on girls under the age of 21.

This means that while I thought cervical cancer or any other issues in the uterus had been ruled out by a normal pap smear (when the nurse called and told me all tests were normal), none of these options have been examined.

The other good thing?  The Ob/Gyn did agree to order an ultrasound to see if there is anything obvious.  THOUGH, in reality, a ultrasound would not show endometriosis, it will show if there is any cyst or mass in the ovaries.  I’m still waiting to hear when that will be scheduled.

Needless to say…I’m frustrated.  If you know of a dr who might be able to help my daughter, please share her story….but please re-iterate I don’t want to take time off of work, drag my poor sick child out of the house and get my hopes up if you are just going to lecture me about how to handle the nausea and vomitting she’s been handling since September 01, 2010!

Okay enough said..I’m signing off.  Night all!

Well, it’s been a week since my last post.  I can hardly believe it.

I had been hoping all week that by now, I would be able to say all was better.

All is not better.

On Monday we met with the primary care dr to discuss where to go from here.

We discussed the additional symptom of not having a bowel movement in 3 weeks.  It had been discussed many times before but, since she wasn’t keeping food down, the decision was made that she just wasn’t processing anything and therefore had no need to go.

BUT, after more discussion with our primary care dr and the gastroenterologist from Children’s (in seperate conversations), both decided it was time for more drastic measures.  The Primary care Dr did not want to proceed without first discussing directly with the gastroenterologist at Children’s so we waited.  Tuesday evening we received word that our Primary care Dr had not had any luck in actually getting the Children’s dr to call him back.

Wednesday morning I was on the phone only to find out that the Children’s dr (who is the also head of the gastroenterology department at Children’s) had been called away late Monday with a family emergency with no idea when he would be back so he was out of the picture.  Knowing this, our primary care dr contacted a colleague of our gastroentererologist at Children’s and they came up with a plan.  This was Wednesday evening.

The plan?  Miralax.  Double strength, 3 times a day.  The hope was that in 2 days, her system would start moving and she would feel better.  I was told to call him on Friday with an update.

Two days of hoping, praying and disgust that all of this pain and suffering may have been cased by constipation only to now tell you that the Miralax has not helped.

Trina is exhausted.

The primary dr has been contacted and he has decides she should remain on the reglan (a motility agent) and continue on a regular dose of Miralax.  If he believes she is fully cleaned out by Monday, he will then start her on meds for a possible underlying migraine headache that he believes may be the culprit.

What do we do now?

We wait.  That’s all we can do.  We have been to 9 doctors, had every test of her stomach we can do, have verified it’s not cancer, it’s not h.pylori and it’s not an ulcer.

We are now looking at possibly pulling her offiically out of Hanford (her high school) as she has only been able to attend 1 day of schooling since school started.  Our problem?  What can she do?  She sleeps most of her day and most of the night with random, occasional boughts of alertness throughout the day but not enough to go to school even for an hour…

It amazes me that we have still not found a solution.

Secondly, it amazes me that Children’s hospital has already submitted a bill to the insurance…are you ready for this?  One day in the ER with 2 bags of fluid, 3 drs who said they couldn’t do a thing and an MRI?  $5,987!

Boy am I glad we have medical insurace x2.  We will still wind up paying a lot of $ but still…

MRI scheduled for 5:30. Zofran IV prescribed. Neuro drs are hesitant to assume cyclic vomiting as symptoms are not a-typical, also say not typical of stress, Gastro Dr says not gastro…
Still at Children’s hospital in the er.
Chairs are not comfortable,  David is laying on the floor with back and incision pain…
Praying for relief soon!

It is hard to believe we have been dealing with Trina being sick for nearly 40 days now and I haven’t already blogged about it but it’s been a month of insanity …

It all started the 2nd day of Trina’s Freshman yr at Hanford. We were all excited to get back into a routine and adjusting to the new school year when I get a call from Trina stating she had vomitted all over the hallway at school…she was going home to sleep it off.

My first question was..what dis you have for lunch?

She informed me she had mad a Ham sandwich.

I was surprised because I didn’t think we had any Ham left until I remembered buying some Ham lunchmeat the week her Grandma Ruth had come to visit (last Wk in July).

“Oh no honey, I bet the ham was bad..go home and rest, hopefully you will feel better soon.” I said.

That was 50 days ago.

Since then, the vomiting has not stopped. She has not been able to keep food or liquids down for long (Max I have seen is an hr).

She also has been unable to go to school because she is weak and not very coherent.

We have run the gamut of Drs in the Tri-Cities with our primary Dr spending 2 wks to finally realize there was something wrong.

We switched Drs and have now seen a gastroenterologist and also attempted a number of NAET sessions.

We have been to 5 Drs total. She has had an ultrasound, upper GI xray, cascan, and an upper GI scope along with a ton of blood work with no resolution and no improvement.

We have even tried nausea meds normally given to chemo patients with no improvement.

We know that it is not celiac disease, not an allergy, not an ulcer, not a malfunction in her digestive system, not migraines, not the gallbladder, not a blockage, and not mono.

And that’s the short list.

So tonight we are off to Seattle in preparation of seeing a gastroenterologist at Children’s Hospital tomorrow.

Many who know about what we have been dealing with have said how horrible it must be and yea it is but I am trying not to dwelling on the bad situation.

I am instead saying a prayer that God will come down and provide Trina some relief and hope of some normalcy.

I would love it if you would join me in praying for healing for Trina!

I can’t believe one year has passed.  I just looked and it is has been at least a year since I updated or posted anything on this website.  One Year has passed since gpa Wright has passed away, wow!

This is cool go here to take a look.

http://www.prnewswire.com/mnr/hasbro/39636/

Today is a sad day.  Grandpa Wright was put in the hospital on Saturday.  Today at 9:15a he has passed away.  I didn’t know gpa wright very well.  After Melissa and I got married we had moved away and hardly saw him.  Just this past month Melissa and the kids went up to visit with him.  He has been battling with medial issues for a number of years and she felt the need to see him in case something happened and would never get to see him again.  They went up on Easter to visit and he saw our 4 year old for the first time that is how long if not longer we saw them.  He didn’t look too well and so it is a good thing she did.

He is now at peace and not hurting anymore.  He is with the Lord and is in a better place.  I’m just glad he was able to see great grandchildren one more time before he passed.  He will be missed.